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Patients & Families Resources

​Support For Patients And Families Affected By Sickle Cell Disease.

We Are Committed To Creating A Brighter Future For Those Affected By Scd, Ensuring That No Family Faces This Journey Alone.

At the forefront of the NESCC’s advocacy and support movement is our unwavering dedication to enhancing the well-being of individuals and families navigating the challenges of SCD. Join us as we pave the way for comprehensive support, empower communities, and advocate for meaningful change in the landscape of sickle cell disease awareness and care.

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Resources for Patients & Families

Support Programs

Hole in the Wall Gang Camp

Massachusetts Sickle Cell Association

Next Step Foundation

Camp Sunshine

A Kid Again

Dream Day on Cape Cod

Comfort Cuddles by Erin

Next Step Resources Fall 2025

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Learn How You Or Your Community Can Get Involved.

Whether you're living with SCD, caring for someone with the disease, or simply passionate about making a difference, there are many ways to get involved.

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Upcoming Events

Join Us At The Annual Sickle Cell Disease Symposium September 13th, 2025.

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