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Resources
Understanding stroke risk phenotypes in pediatric patients with sickle cell disease and concurrent moyamoya arteriopathy: insights from 61 cases at a single institution
Pediatric neurosurgery is a highly specialized field that focuses on diagnosing and treating neurological disorders in children. Recent research has brought significant progress in understanding and managing complex conditions affecting the developing brain and nervous system. This blog post explores the latest advances in pediatric neurosurgery, highlighting key findings, innovative techniques, and their implications for improving outcomes in young patients. Read More
Christine Briscoe
Apr 141 min read
Pregnancy in Sickle Cell Disease
About: Fifty years ago, people with sickle cell disease (SCD) were discouraged from becoming pregnant, but now, most should be supported if they choose to pursue a pregnancy. They and their providers, however, should be aware of the physiological changes of pregnancy that aggravate SCD and pregnancy’s unique maternal and fetal challenges. Maternal problems can arise from chronic underlying organ dysfunction such as renal disease or pulmonary hypertension; from acute complica
Christine Briscoe
Mar 271 min read
Management of Acute Pain in Pediatric Patients with Sickle Cell Disease
About: The management of acute and chronic pain for individuals living with sickle cell disease (SCD) is a clinical challenge. This reflects the paucity of clinical SCD pain research and limited understanding of the complex biological differences between acute and chronic pain. These issues collectively create barriers to effective, targeted interventions. Optimal pain management requires interdisciplinary care. Objective: These evidence-based guidelines developed by the Ame
Christine Briscoe
Mar 271 min read
Blood Transfusion for Pediatric Patients with Sickle Cell Disease
About: American Society of Hematology 2020 guidelines for sickle cell disease: transfusion support. Objective: Red cell transfusions remain a mainstay of therapy for patients with sickle cell disease (SCD), but pose significant clinical challenges. Guidance for specific indications and administration of transfusion, as well as screening, prevention, and management of alloimmunization, delayed hemolytic transfusion reactions (DHTRs), and iron overload may improve outcomes. Ou
Christine Briscoe
Mar 271 min read
Prevention and Treatment of Stroke for Pediatric Patients with Sickle Cell Disease
About: American Society of Hematology 2020 guidelines for sickle cell disease: prevention, diagnosis, and treatment of cerebrovascular disease in children and adults. Objective: These evidence-based guidelines of the American Society of Hematology are intended to support the SCD community in decisions about prevention, diagnosis, and treatment of the most common neurological morbidities in SCD. More Information:
Christine Briscoe
Mar 271 min read
School Planning and Accommodations Form
About: School Planning and Accommodations Form More Information:
Christine Briscoe
Mar 271 min read
Fever and Infection Handout
About: Initial Evaluation and Management of Fever in Pediatric Patients with Sickle Cell Disease More Information:
Christine Briscoe
Mar 271 min read
Painful Crises
About: Painful episodes in the child with Sickle Cell Disease. More Information:
Christine Briscoe
Mar 271 min read
Bone Marrow Transplant in Sickle Cell Disease
About: Resources on Bone Marrow Transplant in Sickle Cell Disease. More Information:
Christine Briscoe
Mar 271 min read
Sickle Cell Reproductive Health
About: Focusing on Sickle Cell reproductive health to eliminate disparities. It is astonishing how much we do not know regarding sickle cell and reproductive health. Now that individuals with sickle cell are surviving well into adulthood, we must advance the knowledge around our sexual and reproductive health. More Information:
Christine Briscoe
Mar 271 min read
Dream Day on Cape Cod
Location: Brewster, MA About: Dream Day on Cape Cod provides a weeklong camp for families of children with chronic illnesses. Applications are online. Applications close on Friday 04/05/24. Visit Their Website For More Information:
Christine Briscoe
Mar 271 min read
Massachusetts Sickle Cell Association
Location: MA About: Provides support meetings, wellness programming (living well with sickle cell disease), and peer-to-peer network among other supports. Visit Their Website For More Information:
Christine Briscoe
Mar 271 min read
A Kid Again
About: Available to children under the age of 20 years old. Their Adventure in a Box (which is mailed quarterly) program offers activities with a specific theme. For example, a past quarter had a Friday Night Magic theme; this included a box with supplies to perform magic tricks, and a date/live instruction by a magician on how to perform tricks. The referral form can be found on the website. Visit Their Website For More Information:
Christine Briscoe
Mar 271 min read
Next Step Foundation
About: The following resource will be available to your child when they turn 13. Available to individuals with chronic illnesses (including SCD) ages 16 through 25 years old. Provides conferences (ages 18 – 29) and ongoing programming includes STRIVE (afterschool homework/mentoring program online), Song Studio (music therapy), and Mass STYLE Mentoring (3-month mentoring) to ages 13—29. More Information: Contact person is Kepler Jeudy, Program Director kepler@nextstepnet.o
Christine Briscoe
Mar 271 min read
oneSCDvoice - Networking
About: Community connections. More Information:
Christine Briscoe
Mar 271 min read
Neurocognitive Functioning in Children and Adolescents with Sickle Cell Disease
Handout from our 2025 Symposium
Christine Briscoe
Mar 271 min read
Neuro Health Screening in Adults with Sickle Cell Disease
Handout from our 2025 Symposium
Christine Briscoe
Mar 271 min read
Hydroxyurea for Sickle Cell Disease: A Daily Vitamin to Ensure Optimal Health
Handout from our 2025 Symposium
Christine Briscoe
Mar 271 min read
Chronic Transfusion Therapy for Brain Protection in Children with Sickle Cell Disease
Handout from our 2025 Symposium
Christine Briscoe
Mar 271 min read
Blood Transfusions in Sickle Cell Disease (Easy Guide)
Handout from our 2025 Symposium
Christine Briscoe
Mar 271 min read
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